Tomorrow a decision has to come about something that I have dreading for the past 4 years. Kyle has a doctors appointment in Chicago, he has one every 6 months to a year to see how his muscular dystrophy is progressing. We will have to make a decision tomorrow if we are going to start steriod treatment. The reason we would want to start steriods is to keep the remaining muscles he has strong. We have started to see some strength deteroriation with Kyle over the past months. He has fallen more and he doesn't quite have the strength at the end of the day. Best case scenerio is the steriods help for about 6 years. The problem is there are many side effects that aren't to great. The is weight gain, mood changes, and many other possible problems with all sorts of other things.
This is one of the days that I have been dreading since he was diagnosed with md.